TAUNTON, England — Somerset and England cricketer Tom Kohler-Cadmore is using his platform to champion awareness and support for children born with cleft lip and palate after his own son, Dougie, was born with the condition in late 2023. The 29-year-old batter is sharing his family's journey to shed light on the incredible work of medical professionals and charities like the Cleft Lip and Palate Association (CLAPA), aiming to destigmatize the condition and offer hope to other new parents.
The journey began when Kohler-Cadmore and his partner, Frankie, received their 20-week scan results. "We found out at the 20-week scan that he had a cleft lip," Kohler-Cadmore recounted in an interview with the BBC. "It was a bit of a shock to the system, but the support we got from the NHS and CLAPA was incredible." This initial diagnosis, while daunting, opened the door to a network of specialized care and community support that would guide them through the process.
Understanding Cleft Lip and Palate
A cleft is a gap or split in the upper lip and/or the roof of the mouth (palate) that occurs when facial structures developing in an unborn baby don't close completely. It is one of the most common birth conditions, affecting approximately 1 in every 700 babies born in the UK. While the exact cause is often unknown, it is believed to be a combination of genetic and environmental factors.
The condition can present challenges that require a multidisciplinary approach to care, often involving:
- Feeding difficulties, as babies may struggle to form a seal to suckle.
- Potential for ear infections and associated hearing problems.
- Dental issues as the child grows.
- Speech and language development hurdles.
Dougie's Journey and Surgical Success
Young Dougie underwent his first major surgery at just three months old to repair his cleft lip, a procedure that typically takes several hours. Kohler-Cadmore has been open about the emotional challenge of that day. "Handing him over for the operation was the hardest thing I've ever had to do," he shared. "But the surgeons were amazing. They are absolute miracle workers."
The surgery was a resounding success. The family now looks ahead to future procedures, including a potential palate repair surgery, which is usually performed between 6 and 12 months of age. This surgery is crucial for enabling normal speech development and preventing food and liquid from passing into the nasal cavity.
The Role of Specialized Feeding
One of the immediate hurdles for newborns with a cleft palate is feeding. Standard bottles are often ineffective, but specialized equipment provided by organizations like CLAPA makes a world of difference. "We were given special bottles," Kohler-Cadmore explained. "You have to squeeze the milk into their mouth because they can't create the suction. It was a learning curve, but we got there." This support is vital for ensuring the baby receives adequate nutrition to grow strong enough for their surgeries.
Raising Awareness and Breaking Stigma
For Kohler-Cadmore, speaking out is about normalizing the condition and ensuring other families know they are not alone. He emphasizes that a cleft is not a definition of a child but simply a condition that can be treated. "It doesn't change who they are. Dougie is the happiest, most smiley baby you could ever meet," he said, beaming with pride. His goal is to use his profile in cricket to reach a wider audience and direct support towards the charities that helped his family.
The cricketing community has rallied around the family, with teammates, fans, and even rival counties offering messages of support. This sense of community has been a powerful source of strength. Kohler-Cadmore hopes that by sharing Dougie's story, he can contribute to a more inclusive and understanding world for all children with visible differences. "If we can help just one other family feel a bit more at ease, then it's all worth it," he stated.
How to Support and Learn More
Kohler-Cadmore is encouraging people to learn about the work of dedicated charities. CLAPA, for instance, provides a lifeline for thousands of families across the UK and relies almost entirely on donations. Their services include:
- Providing free specialist feeding equipment for newborns.
- Offering emotional support and connecting families.
- Funding vital research into the causes and best treatments for cleft.
- Raising public awareness to challenge misconceptions.
The response from the public has already been significant, with many donating to CLAPA in Dougie's name. Kohler-Cadmore’s openness has started a important conversation, demonstrating the positive impact athletes can have off the field. "The more we talk about it, the less of a 'taboo' subject it becomes," he affirmed.
As Dougie continues to thrive, his father remains committed to his advocacy. Looking to the future, Kohler-Cadmore is optimistic and focused on the joy his son brings. "He's our little champion. He's been through so much already and has a smile that lights up the whole room. We want to show everyone that a cleft is just a small part of his story, and his story is already incredible." Through their vulnerability and strength, the Kohler-Cadmore family is inspiring a new wave of understanding and compassion.